Motor Neurone Disease Association Registered Charity Number: 294354
Keep up to date with all that is going on in the way of News, Fund Raising and Conferences by down loading your own copy of
The News here.
If you would like to say anything regarding MND, then this is the place to do it.
It doesn’t matter what it is, it could be something that you are doing to help someone who has MND or a handy tip that you might have discovered that could help someone else in a similar situation, anything at all.
Email me at janine@chrisborny.com
and I will endeavour to get your news on to the web site at the next update.
The AGM held on 18 May was very well attended, we had two excellent speakers: Lucy Etheridge (Volunteering Development Coordinator) speaking about her role with the association and Mike Hardy who gave a wonderful presentation on ‘His journey living with MND.
The Jersey branch have funded the updating of the MND Resource Files.
We are also sponsoring a Speech & Language Therapist to attend the Health & Social Care Professionals Conference on 14 June in Birmingham.
Shirley Bull and her two daughters will be climbing Mount Kilimanjaro next year, it being the 10th anniversary of Steve Bull’s death from MND.
They have set up a website for donations: www.justgiving.com/shirley-bullandgirls.
After the sad death of our former patron Lady Gail Crill, the Bailiff of Jersey Mr. Michael Birt has kindly agreed to become our new local Patron.